Category: Advice

  • Looking After Your Back

    Looking After Your Back

    This year, Back Care Awareness Week is taking place during 2nd – 6th October. According to Backcare, 1 in 4 people suffer daily or regularly with back pain. Have you ever been one of these people? Our Supplier Directory could be of great assistance for you, with over 50 suppliers in our Chairs, Seating, and Postural Support category.

    When lifting loads of equipment at home or in the workplace, it’s important to remember what you learnt in your moving and handling training. Did you know that Disabled Living have a wide range of moving and handling courses available? This also includes an Advanced Moving & Handling  for Therapists.

    Some of us don’t realise how important our backs are. Think about the amount of times you haven’t sat up properly; haven’t lifted a heavy piece of equipment properly; or overdone it at the gym. We shouldn’t neglect looking after our backs. Here are 3 ways that you can look after your back.

    Maintain your posture

    2 people sitting down

    Conditions can affect people’s posture. That’s why it’s important to know what products are available to help them. If you’re someone who works at a desk, sit up right on your chair and try not to slouch. Part of maintaining good posture can also mean taking breaks to stretch the rest of your body.

    Reduce your stress levels

    man meditating

    Did you know that stress can cause backache? The NHS tells us that it can. Perhaps you want to try meditation techniques, yoga, or try some simple breathing techniques. These can all help to make you feel relaxed, therefore, causing less stress onto your back. Breathworks have a great video that can help.

    Have the right products for you

    bath seat redbank house

    Are you in need of specialist chairs, seating equipment, postural support, or sleep systems? Take a look at our Supplier Directory. Many of our great suppliers are in there including Felgains and Simple Stuff Works.


    The right care is available. There are many products for different areas of your home, workplace, and day-to-day routines that can assist you. Visit Disabled Living’s website or call 0161 214 4590 for further assistance on looking after your back.

  • Guidance on Choosing What to Keep in Your Archive

    Guidance on Choosing What to Keep in Your Archive

    This is the second blog from Heather Roberts (HerArchivist, archive consultant), explaining the process we undertook for appraising our photographs archive.

    Appraisal

    Appraisal is a term that archivists use a lot. It means “choosing what to keep”. Contrary to some beliefs, we are not “professional hoarders”. Well, most of us aren’t, I have my suspicions about some of us.

    An archive is:

    An archive is a collection of records (that are either physical or digital) that are the evidence of something or somebody in the past, which you keep so that others can remember it in the future.

    (HerArchivist, “Create your own archive” toolkit, p.5)

    Disabled Living photo archives

    When presented with loads of “stuff”, you therefore need to think about what fits the definition.

    Disabled Living’s Donkeys to Innovators project have hundreds of incredible photographs evidencing activities, staff, premises and so much more. We are not archiving them all. Many are duplicates and we don’t really need more than one of the same thing. We are going to appraise them.

    Here’s why…

    Duplicates

    Disabled Living photo archive Redbank House

    More than one of something is great. It beats having nothing. However, if you are keeping two or even three or more of something, you have to store it. A few hundred photographs take up enough space as it is. Add to that the special archive packaging and you’ve easily doubled the required space. If you have the space available then fab. Most organisations have to be very careful with storage space. The cost of it needs to be worth what you’re putting in it.

    Also, archival packaging isn’t cheap. Photography packaging in particular as it requires special materials to help preserve the photographs. It may not be financially sensible to spend money on more than packaging than you strictly need.

    The easiest way to reduce the volume of your archive and therefore space and money is to take out duplicates.

    Below are the two main things we have been considering when appraising duplicate photographs on the Donkeys to Innovators project.

    Information

    folders

    Two photographs may be the same. Same image, same angle, same size etc.

    If that’s the case, check the back. If one is blank and the other has a date, photographer’s stamp or scribble on the back which reveals some further information about where the photograph was took or who/what is in etc., that is the one you choose to keep.

    It’s frustrating when you have a great image but no information about it. Keep the one which has the most added information and you’ll have a richer archive.

    If both have the same information, then keep the one in the best condition.

    Condition

    Disabled Living photo archive

    Photographs are very delicate. They are the materials for which archivists insist on wearing cotton gloves, to protect the chemical surface of the image from the oils on people’s hands. Even freshly washed and thoroughly dried hands can easily damage a photograph.

    Photographs are also subject to light damage. This is when prolonged exposure to light has faded the photograph’s image and it is no longer as clear. Light damage is irreversible so if you have any photographs, be mindful of light exposure.

    Photographs can be torn, holes poked through where they’ve been pinned up, stained where Sellotape has held them in place and all sorts of similar damage.

    Choose the photograph that is in the best condition. Fewer stains, clearer image, least holes and tears etc.

    Information vs condition

    2b pencils

    Some decisions on the Donkeys to Innovators project have gone like this, “Well, this photograph is in the better condition, but this other photograph of the same image has more information on the back. Which do we keep?”

    The trick here is to choose the photograph which is in the best condition (and therefore easier to keep and use) and transfer the information from the other photograph onto this one. Either, write on the back of it with a soft pencil (2B or softer will do) or put it in a folder/envelope and write the information on that, again in a soft pencil.

    Soft pencils are the archivist’s weapon of choice because you don’t have to press very hard to a surface to write (hence reducing possible damage to the item) and because they are easy to rub out (in case of mistake), they don’t leak ink all over your invaluable archive either.

    We are looking forward to revealing some of our fabulous photographs to you on this project. We are certainly having an amazing time working with them.


    Heather’s free “Create your own archive” toolkit can be downloaded here.

  • Understanding Parenting with a Disability

    Understanding Parenting with a Disability

    Thank you to Chris, our Disability Trainer and Advisor for writing this post about understanding parenting with a disability.

    I’m a wheelchair user who can’t walk at all and have been since I was 7-years-old when I caught polio. But very early on in adulthood I knew I wanted kids. I hadn’t thought it all through then but the thought was always there.

    I graduated and started to work (as a school teacher), and eventually got married.

    By this time I was very confident of what I could and couldn’t do in work, at home, around town, on holiday and so on. But the prospect of bringing up children was something else entirely.

    I had concerns in 3 areas:

    • Could I physically manage? Stairs, transport, carrying baby etc
    • What would other people think? “Is he able to manage?”
    • What came later – how would my growing kids view me? “All my friends Dads are playing football with them…”

    Well I can report that it all worked – not all plain sailing but an incredible journey. Looking back now over the last thirty five years I’m now at the grandparent stage – nine so far with every prospect of many more!

    Of course one short article can’t give you every practical piece of advice you might want.  And the advice is very specific to your disability anyway. I can give you everything you need to know if you’re a wheelchair user and I can give you my general observations on attitudes. This includes ideas for further research (see below). If you are worried there is a tremendous amount of top-quality, specific information out there.

    I think you’ll discover particular solutions that work for you. Disabled people are a very diverse group indeed – the variation across wheelchair users for instance is vast. What’s common though is problem solving and determination.

    close up of baby and parent touching hands

    Okay, so, I can’t walk at all. How do I carry a baby up and down the stairs?

    Why don’t I live in a bungalow you might ask? Well, when I became disabled I already lived in a house and I liked sleeping upstairs so I carried on. Sixty years later nothing has changed!

    I found that if you tightly wrapped up baby in a shawl you could carry him/her in your teeth. Good enough for lions and tigers so good enough for me. I did what I needed to do.

    How do I keep baby safe when I’m out and about if I’ve got my hands on the wheelchair most of the time?

    The standard child harness went over shoulders and clipped to my belt which worked perfectly, just the same as for everyone else.

    What if they run away, you can’t catch them?

    Well, they just didn’t. It’s as if they know you can’t chase so they don’t go running off too far. As they grew I would be trying to give them independence but always telling them not to go too far/too fast. They seemed to take this on board.

    Sometimes you see parents frantically running after their little loved ones and obviously getting really worried that they won’t catch up. But I’d say the child hasn’t been properly primed and that the child absolutely knows the parent will chase. So it’s all a bit of fun to them!

    What did other adults think?

    I’ve always said – most people, most of the time, do the right thing – and that applied here in abundance. There were lots of offers of help and total acceptance of the situation.

    I mentioned I was a schoolteacher. There were some initial reservations about whether I could command a class, deal with emergencies and exert discipline. But the children always responded. They might mess other teachers around but not me!

    I’d often transfer to sit on a higher bench so I could see the class easier leaving the wheelchair empty. The pupils would then argue about whose turn it was to sit in it for the lesson!

    wheelchair users playing basketball

    So, my lads turned out to be very sporty but there were no issues at all around me being unable to participate. They watched me play wheelchair basketball and I watched them swimming, playing rugby and the rest. It all worked so well I found myself running the junior rugby club for years. Interestingly not a single questioning/negative comment ever from players, parents, visiting parents etc I was just decent at the job so they let me carry on.

    There’s lots of hard work but also so much to smile about.

    What’s still happening?

    I park up with one of my lads in the car. He gets out and gets my chair set up. If I’m fiddling with keys, gloves or bags he’ll sit in the wheelchair and scoot off round the car park for a minute. Lots of admiring faces because he’s very skilled (poor lad but doesn’t he do well?).

    He then races back and promptly stands up! Admiring faces change – they’ve been duped. But then I transfer into the chair. Oh, it’s dad and he really is disabled! Conflicted or what?

    Or this – I’m at home in my comfy armchair, wheelchair alongside. Grandchild asks if they can use the wheelchair and zooms off outside. “This is great; can I have one for Christmas?” “None of my friends has got one of these”. “Can I take it to school for “Show and tell?”

    brown wooden empty stair case

    Incidentally, when grandchildren stay over they all copy me on the stairs. If I sit on the top step and start to bump down then so do they!

    Of course I had to sort a lot of these things out as I went along – no computers, no mobiles at the beginning, but now there is a wealth of information out there. If you’d feel safer with more information, then there’s a lot to research relevant to your own specific issues. Just try to approach the situation with some confidence. People have been there before. Disability didn’t just start with the Paralympics. Parenthood will be so rewarding, and you’ll find there are lots of people in the same boat.

    Try these sources of information:

    • NHS Choices – discusses entitlement to support and your needs will be properly assessed.
    • You can also get in touch with other disabled parents via Netmums
    • Scope – where you will find all sorts of useful links
    • Disability Horizons – this website has hundreds of relevant articles and a blog
    • DPN (Disabled Parents Network) – again, endless links here.
    • Super Nanny – lots of useful links
    • Many relevant self-help groups, including specific to your disability
    • Many relevant chat-rooms
    • Lots of online support

    If you would like to share your experience on Disabled Living’s blog about parenting with a disability, send an email to: info@disabledliving.co.uk

  • The Importance of Disseminating Information to Your Service Users

    The Importance of Disseminating Information to Your Service Users

    This blog is written by Jayne Watson, one of our Occupational Therapists.

    Disabled Living host 5 of the largest exhibitions for kids and adults with disabilities. The exhibitions are a great way of finding information on equipment relevant for the individual to remain as independent as possible throughout the different stages of their lives.

    Not only do we look at equipment, but we also have a wide variety of funding organisations, mobility vehicles companies, solicitors, employment agencies, colleges, and charitable organisations. There are also fun activities to occupy the children during the day, with a good variety of catering services available if feeling hungry.

    These events are also a great way for professionals to network with other professionals and update their continuing professional development (CPD); presentations cover a wide variety of topics. These seminars are also open to families and carers of children with disabilities and special needs. Entry to these events is free on a first come, first served basis.

    Now here is the gripe

    A professional reported to one of my colleagues that they aren’t disseminating information because they can’t provide a specific piece of equipment. However, I can’t specify how important it is to inform families of these events as it gives them the choice on whether to attend or not.

    For years now I have been part of the Kidz to Adultz exhibitions, however part of my role working for a charity is that we receive numerous enquiries from parents all over the country in search of equipment for their disabled children, as well as funding and various other requests.

    On asking do you have any professionals involved it appears that the majority depending on their locality who attend our events are not informed by professionals, and that the tickets clearly state that it is for parents and the professionals working with them.

    I feel that families are missing out on vital opportunities to provide their children with the best quality of life knowing there is a wealth of information, choice and support that their children deserve. In addition, it improves the health and well-being of all families.

    I find it difficult to imagine that all those professionals who are involved clearly don’t disseminate this information. Informing families will reduce an immense amount of stress knowing that they are not alone and that there is support out there.

    Why not share this information?

    For all those professionals who read this blog and attend our Kidz to Adultz events please kindly share this information down to your service users or request extra tickets for disseminating information about the events to your network. Families are missing out on so much information when they don’t need to.

    For more blog posts like this please visit: www.disabledliving.co.uk/blog

  • Seating and Posture with Phil Moore

    Seating and Posture with Phil Moore

    This post has been written by Deborah Bell, Enablement team manager at Disabled Living. Our latest Lunch and Learn session was full to the brim. Therapists from all over Manchester attended the Seating and Posture session.

    17 therapists at our Disabled Living Training room were joined by Phil Moore. He talked about the importance of seating. In his discussion of seating in the past, he developed his presentation taking us into the relevant and accurate assessment of our clients.

    We learnt that this enables them to have the best chair for their purpose.Phil Moore delivering Lunch and Learn

    Phil seemed concerned about people over prescribing. But the reasons for that may be a whole other blog topic around positive risk taking and legislation. Elaborating on this, he shared his experiences of assessing people who had poor posture due to the direction their chair was in.

    People will always position their posture due to the thing most focused on whether it’s the TV, a conversation with someone, or looking out of a window, without moving their chair. This can then lead to the person sitting asymmetrical for no good reason.

    The group was very interactive and included a discussion where we asked Phil questions about issues he had come across. We also had an interesting discussion around seating and dementia. This could have carried on for a couple of hours if there was more time.

    All in all it was a very interesting two hours which, concluded positively with ideas that small things can often make a huge difference. Not only this but that, the importance of finding the right chair, can help an individual improve their posture in the future.
    Lunch and Learn food

    Phil provided a fantastic lunch of sandwiches, sushi, fruit and doughnuts which was enjoyed by all of us who attended.

    The networking was great and Phil introduced Graham who looks after the Chair Doctor, a service which provides specialist repair and refurbishment of posture, nursing and riser/recliner chairs. This seems like a very useful and popular service in days when we have to look after every penny.

    The Care Team look forward to delivering more sessions and are working closely with Disabled Living. So, stay posted for more information about these events coming soon.

    Keep up to date with our latest news on Twitter @disabledliving.

  • Finding the Right Hotel for You and Your Disability

    Finding the Right Hotel for You and Your Disability

    This is a third blog by Chris, giving you the best advice for finding the best hotel for you and your disability. Staying in a good hotel can be an integral part of the enjoyment of your holiday or an indispensable part of your work. So how do you choose, if accessibility is a factor?

    The word ‘access’ can be tricky here. The hotel might mean you can get in and have a drink. You may be able to reach the restaurant and have a lovely meal, but you may not be able to stay as there are no suitable rooms. You read phrases like ‘some access’ ‘reasonable access’ or ‘fairly accessible’ which are ultimately meaningless.

    There are many booking websites now and good ones such as booking.com have an accessibility filter so you can click on ‘facilities for disabled guests’.

    This often works well but increasingly I am encountering problems. The reason is that the establishments are self-certifying. In some cases they are given basic guidance when they sign up but it’s up to them.

    There is no huge inspectorate going out to check every hotel. You would think people would be honest as the last thing they want is an argument in reception when a disabled visitor is unhappy but on the other hand they don’t want to turn away potential custom by saying they have no facilities when they may have a few. So, use the booking websites for initial research but ring the hotel direct when you think you have found one and check carefully.

    In France and part of Italy there is a booking organisation called ‘Logis’. You can use this like booking.com with their disability filter. You can check whether the restaurant is accessible, whether there are any accessible rooms, or both. This filter has worked very well for me with only one disagreement in 15 years of regular use.

    When researching, TripAdvisor has a disability group you can join which holds lots of relevant accessibility information.

    Even when you are in a hotel which boasts about its great accessibility features there will be no consistency from one establishment to another – particularly in toilet/bathroom provision.

    A typical accessible hotel room will have a few standard accessibility features – possibly a larger room, possibly a larger bathroom, often bath removed and shower installed (often with no seat), one or two grab rails in the bathroom, red alarm cords for if you fall in the bathroom or roll out of bed and a phone with large buttons.

    Even if the room is good it might be located a long way from the reception or the restaurant – even in a different building. That might be the only place with suitable rooms to adapt so again, check. This is surprisingly common and arises because new buildings may have been added as the hotel has expanded and these new buildings are more likely to conform to current accessibility guidelines.

    Keep a cool head – when in Cyprus last year our accessible room was an absolute delight. It had been decided that the rooms should be on the ground floor for fire safety – fair enough. But to make the ground floor accessible they had ramped what had previously been 8 or 9 steps up from Reception. The ramp was ridiculously steep. The only people confronted by this ramp were the disabled guests. Everyone else went to different floors by the lift with no slope in sight.

    When in Majorca I remember talking to the manager about his brilliantly adapted accessible bathroom. He was in the bathroom and I was in the bedroom because I couldn’t get to the brilliant bathroom as the door was too narrow.

    In many ways you are safer with an established chain. Premier Inn and Novotel for instance each have an excellent design for their accessible rooms and bathrooms so you can rely on consistent provision across the country.

    A good hotel will have bed raisers available, maybe a mobile hoist, ability to change a double bed for two singles and so on. Check their website or ring direct.

    When researching a hotel online, look for their Access Statement, which is where they all relevant accessibility information should be contained. If there isn’t a statement that’s your first warning sign!

    If you book a hotel room in a hotel which is part of a holiday complex of some kind then you may have an accessible room in or near the hotel but the accessible shower and toilet are in a nearby building serving the holiday park.

    Don’t take anything for granted!

  • Making the Most of Your Cruise Experience with Your Disability

    Making the Most of Your Cruise Experience with Your Disability

    This post has been written by Chris Cammis, Disability Trainer & Advisor at Disabled Living. He shares his advice for booking a cruise holiday when you have a disability, to help you make the most of your experience.

    This form of travel has become a firm favourite for many disabled travellers in recent years for obvious reasons. It can be great fun but I do recommend that you read on to avoid pitfalls and enhance your enjoyment.

    Before booking, check the cruise line website to see if there are deck plans of the boat you are interested in. You may be given dimensions of rooms, location of accessible rooms, important distances and so on which will be relevant to your planning. Generally, newer and bigger boats have better facilities.

    For instance, some (smaller) river cruise line boats seem to have no adapted cabins at all although they advertise heavily in the older traveler market, whereas ocean cruisers generally will have them. It’s often a balance where the smaller boat has more of a friendly environment but may not have the physical adaptations you need.

    If confronted about the lack of facilities they will often say they are not registered in the UK so do not need to comply with UK legislation.

    Generally the craft are physically very comfortable – level, smooth floors, plenty of lifts, lots of space, well lit, warm and so on – perfect for most of us.

    The main issue I find is getting off the boat at each destination. You are at the mercy of tides, dock structure, depth of water and timetables. The boat may not know exactly where it is docking until told at the last minute due to other traffic and you may only be able to reach land on a small ferry boat from the liner as the gangplank may be very steep and/or very narrow.

    If transferring by a small boat, it’s ultimately up to the captain whether he will risk danger to you and his crew trying the transfer. Sometimes there may be a choice of different size boats taking people from different points on board. So I advise that you do your research. I’ve often found most staff don’t know all the details. So you may miss out if you rely on them completely.

    In Vietnam only one member of senior staff knew there were two sizes of boats going ashore from two parts of the ship. And I needed to be escorted through the staff-only decks to one particular boat so I could get on via a level gangplank rather than by negotiating a precarious flight of steps.

    Once off you will need transport. A question to consider – is it accessible? The cruise company will have various buses for various trips which you can book online beforehand or on-board and pay extra for. These buses are virtually never accessible.

    If you comment they will say they are in a foreign country and have no control over access rules in that country (although we all know the buses would all be made accessible overnight if the cruise company said only accessible ones would do).

    Bigger companies may lay on accessible trips with appropriate transport (if they have enough takers). So do your research online beforehand so that you can ask any specific questions.

    I have to confess that I had a wonderful accessible trip around St Petersburg. There were only two disabled passengers (including me) with their companions. There was a minibus which had access to everywhere and a driver on a mission to show us all the delights of the city. We saw all the standard sights and more without queuing and spent the rest of the voyage telling everyone else what they had missed.

    Staff on-board are often hazy here. They really want everyone to go on their basic trips so they make lots of extra money. They don’t have a vested interest in doing lots of disability research for one or two disabled travellers who can’t go on the official trips.

    Don’t despair, there is always a way. The popular hop on-hop off double deckers which take tourists around many cities of the world are always accessible. If they cover your destination, they will be on the dockside so buy your 24 hour or 48 hour ticket and you will be taken to every tourist destination available.

    Alternatively, you could book a taxi on your own. Just discuss where you want to go, when you have to be back and shake on a price. If language is an issue (very rare with English) the driver will have pictures of destinations so you can just point.

    Bigger destinations will have independent travel companies so you can book online. Check itineraries, interpreters, costs, times, and difficulties then go ahead. It doesn’t have to go through the cruise company.

    If you do make your own arrangements, make sure you have the right visas etc. Normally the staff on-board will organise the appropriate paperwork. But if you are going off-piste you might need to make your own arrangements well beforehand. Russia and Cambodia come to mind.

    Don’t get me wrong – I love cruising. It works beautifully for me as a wheelchair user. But my partner and I do put in the hours online beforehand to make the on-land part work well.

    Would you like to share an accessible travel experience on Disabled Living’s blog? Get in touch by sending an email to: info@disabledliving.co.uk or call us on 0161 214 4590.

  • Travelling On An Aeroplane with Your Disability

    Travelling On An Aeroplane with Your Disability

    This post has been written by Chris Cammiss, Disability Trainer & Advisor at Disabled Living. Chris has been a wheelchair user since childhood. After graduating from The University of Manchester, he was a secondary schoolteacher for 28 years. Chris now delivers Disability Awareness training and conducts Access Audits over the UK. He travels widely and has accumulated a lifetime’s experience in this environment. He shares his advice for travelling on an aeroplane with your disability.

    Flying has become much easier over the years with international guidelines bringing some sort of consistency to the process. However each country, airport and airline has its own individual variations.

    Chris Cammiss

    Here is some advice from Chris to those with disabilities who are travelling in the future.

    When booking the flights either online or in store, check that your disability is recorded. Also, make sure the precise nature of the help required is noted. It is important to consider possible circumstances.

    Can a wheelchair user walk at all? This is necessary for ordering the aisle chair for use on-board. Do you need help around the airport? Can you walk unaided for any distance? Do you need a buggy? Can you see at all? You’re entitled to all sorts of help all round the airport and onto the plane itself.

    These questions may seem intrusive but the precise level of help needed is what’s important. Members of staff are usually trained to be sensitive here.

    When checking in, make sure this information has been noted. At this point check-in staff should send a message through to the assistance point, making your arrival known. It’s useful at this point to go to the assistance point yourself to double-check. Check-in staff often ring the assistance point but if the phone is engaged they may forget to ring later or may be too busy, so the assistance team could think that you haven’t turned up.

    At check-in, you can get a travel tag for your wheelchair, walking frame etc if it is to be loaded aboard to make sure it doesn’t get mixed up with the airport’s own equipment. This is not part of your baggage weight allowance.

    I don’t personally find it helpful to pre-book seats. Different airlines have different policies on placing disabled travellers in aisle seats, non-aisle seats, seating at a bulkhead, avoiding bulkheads and so on so I leave it to them.

    If you are to transfer from an aisle chair check if the seat arm will lift to aid smooth transfer. Usually they do but not always. Each aircraft is different internally.

    There will always be an aisle chair available to get you to your seat in the aircraft if you need it. However, it may be the property of the airport therefore; there may not be an aisle chair on the plane in flight although this is best practice.  Check, especially for long flights. Consider urine bottles or similar to use at your seat. You may also wish to consider using your wheelchair cushion to sit on for extra comfort on long flights.

    All this may seem fairly obvious but I was once helped onto a 10 hour flight to Cuba to be told after take-off that the plane was a double decker, the toilet was on the other floor to me and they didn’t carry an aisle chair – no contingency plan at all.

    En route to New Zealand I asked for the aisle chair and appropriate assistance to then be asked, “What? You can’t walk at all?” as if it was my fault that I was putting the staff to so much trouble. I mentioned this to the Head Steward who saw unemployment staring him in the face and was deluged for the rest of the flight with every expensive gift they could think of.

    Assistance staff will be trained, but this could have been by watching a 20 min DVD. You will encounter a range of people – many women as this is seen as a caring role and men close to retirement as the role is seen as less physical than other roles, so you may not be helped by the big strong tough guy who would make the whole process easier – far from it.

    You may also find yourself transferring in a space with no support, limited help, but lots of concerned onlookers and so on. Your companion may find themselves overwhelmed – carrying their own luggage, yours as well, maybe a cushion or similar, passports and boarding passes. They become invisible as you receive all the help.

    Once on board you should be on the Steward’s list so staff should make themselves known to you, asking what they can do.

    Knowing how roughly luggage can be treated in loading/unloading and how tricky turbulence can be regular disabled travellers will often not take their best/most expensive wheelchair or other equipment with them on planes. It’s hard to give statistics as people often won’t claim damages but I’ve had two bad breakages of my wheelchair in the last ten years – one wrecked the footplate, and the other twisted the frame.

    Each could have compromised the holiday. Luckily we were able to improvise in each case. You could check coverage in your travel insurance if you are concerned.

    Equipment in the hold should be delivered to you at the plane entrance as you get off if that’s what you require, rather than at baggage retrieval, as I once experienced.

    You may have to wait to be helped off a plane. If staff have several disabled passengers to help or several flights have arrived close together or the terminal is huge, there could be a problem. But it is a legal requirement that airline staff can’t all leave the plane until all passengers are off so you’ll always have someone to talk to.

    If all else fails do what they do in Peru. On take-off they cross themselves and after a successful landing they burst into applause. I hope this helps and happy flying!

    Would you like to share your experience of travelling on an aeroplane with your disability? Get in touch with us via email: info@disabledliving.co.uk or call us on 0161 214 4590.

  • Boy with Lennox-Gastaut Syndrome Says ‘Hello Mum’

    James Walker is 16 years old and suffers from a condition called Lennox-Gastaut Syndrome. It is a type of epilepsy which causes multiple different types of seizures. For the first time in his life, James was able to break his silence. He was able to say “Hello Mum” using a new digital communication aid.

    James’ condition left him with severe learning disabilities and without the ability to walk or move. He recently told the BBC that he was “excited to learn something new”. The communication aid allows James to use his eyes as a cursor to click on words and pictures.

    This computer system allows him to stock up thousands of words and phrases that James may use daily and he is hoping to increase this over time as he currently has set up around 60.

    Due to the nature of James condition, he has limited arm movement. And previously his communication system only allowed him to say a few small phrases. It didn’t allow him a choice of phrase or an alarm system.

    Gina Walker, James’ mother said she had never expected that her son would be able to talk. When James said the words “Hello Mum” she was overwhelmed and cried. In her interview with the BBC she said that: “The fact that his first words were ‘Hello Mum’ was just fantastic. It is mind blowing to think I had not heard him speak for 16 years and now I can have conversations with him.”

    James has a great sense of humour that can now be heard

    For the first time in his life, his opinions and thoughts can be heard. Gina said “He has now told me that he doesn’t like my singing, his personality and sense of humour is definitely coming out!”

    James’ mother has also said that this new communication software has improved his health, as he is susceptible to many seizures a day. James didn’t used to have the ability to alert his parents or teachers to an on-coming fit. Gina told the BBC, “Every seizure he has is dangerous, so if I can stop them from being full blown it is worth it’s weight in gold”. The early warning allows her to use a nerve stimulation magnet which sends mild electrical impulses to calm the irregular brain activity which can trigger his seizures.

    Not only does the computer system bring him all this communication it brings him a lot more independence too. He can control the television, his bedroom lights and that’s just the beginning of the possibilities. We can’t wait to see even more technological development.

    Do you know anybody with Lennox-Gastaut Syndrome?

    Catch up with other news on the Disabled Living blog.

Disabled Living